# ‘Too Rare to Care’? A New Center for Rare Diseases Hopes to Change That

- Published: 2026-07-21T09:03:33Z
- Updated: 2026-07-22T03:08:39Z
- Section: Health
- Language: English (en)
- Source: The New York Times — https://www.nytimes.com/2026/07/21/health/gene-therapy-rare-diseases-epilepsy.html
- Tags: The New York Times · Health
- Canonical: https://www.khabarestan.com/en/news/%D9%85%D8%B1%DA%A9%D8%B2-%D8%AC%D8%AF%DB%8C%D8%AF%DB%8C-%D8%A8%D8%B1%D8%A7%DB%8C-%D8%AA%D8%B3%D9%87%DB%8C%D9%84-%D8%AF%D8%B3%D8%AA%D8%B1%D8%B3%DB%8C-%D8%A8%D9%87-%D8%AF%D8%B1%D9%85%D8%A7%D9%86-%D8%A8%DB%8C%D9%85%D8%A7%D8%B1%DB%8C%D9%87%D8%A7%DB%8C-%D9%86%D8%A7%D8%AF%D8%B1-%D8%B1%D8%A7%D9%87%D8%A7%D9%86%D8%AF%D8%A7%D8%B2%DB%8C-%D9%85%DB%8C%D8%B4%D9%88%D8%AF

A new nonprofit wants to streamline gene therapy for diseases often avoided by pharmaceutical companies — making treatment more like a routine procedure than a bespoke drug.

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