# My son's ultra-rare diagnosis took eight years

- Published: 2026-07-07T05:06:49Z
- Updated: 2026-07-12T15:18:35Z
- Section: Breaking
- Language: English (en)
- Source: BBC News — https://www.bbc.co.uk/news/articles/czj82yxz3ewo?at_medium=RSS&at_campaign=rss
- Tags: BBC News · Top News
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Ben struggled to feed, failed to reach developmental milestones and had surgery to remove cataracts.

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